The FASD Respect Act

Asking for Advocacy, yet again!!!!!  I promise this is not all that the blog will be doing!  It just happens that important legislative efforts are making nice strides, and need a continued push to move forward.  Remember to look back at my last blog about Massachusetts legislation, and now let's take on the Country!

The national organization for FASD support and advocacy is FASD United, formerly known as NOFAS.  They recently changed their name to reflect their overall goal of increasing awareness and support for FASD services across the country.  MassFAS is part of their affiliate network and we  have attended many meetings with staff from this organization.  Visit their website here:  FASD United

They are working diligently on a Federal Legislation called the FASD Respect Act..  This Act is very impressive and detailed.  Check out their website for information on the act, and check out their page!  We all need this legislation to unify organizations across the country, to get FASD the recognition, support and funding that is necessary.  Please visit their website to get more information on this wonderful organization.  I have met some wonderful knowledgeable FASD Champions there, and we feel honored to be collaborating with them.  

The effort is being coordinated by Jennifer Wisdahl, a mother of several children with FASD.  Read more about this legislative effort at  There, you can read about the legislation and this great organization.  They just launched a super easy way to write to your legislators, asking for support of this act.  You just send a text!  I did it on Sunday in about 5 minutes.  Please take the time to do this to support our super special friends and family members with FASD.  Just click on the bold text below and reply to a few questions!

Text Your Support for The FASD Respect Act

You can now text a letter of support for the FASD Respect Act (SB 2238/ HR 4151) to your two Senators and your Representative.

Simply text the words SIGN PRVJQX to the number: 50409.

They have many great tools for parents and caregivers caring for individuals with FASD here

https://fasdunited.org/tools-for-parents-and-caregivers/

Written By Kristen Eriksen

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“Sometimes I feel left out, like everything is about him.”  Having a Siblings with an FASD

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Awesome News!