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Boston 25 News

A massFAS family speaks on FASD, in the context of recent FASD prevalence research. Also, FASD prevention is highlighted. Check out this great news clip at www.boston25news.com!

Mark Ockerbloom and Vanessa Welch of Boston 25 News.
www.boston25news.com 28 FEB 2019: “You may have heard it is not a huge deal for a pregnant woman to have a glass of wine every now and then, but new research has local doctors concerned.”

Great Hampshire Gazette article on FASD in MA.

Thanks to Leslie Leff, LICSW, child clinician at the Cutchins Northampton Center for Children and Families, Andy Castillo of the Gazette wrote a great article on FASD in MA. Check it out at www.gazettenet.com! Now YOU can reach out to your local newspaper, and Enid will help.

“I work with children, primarily, who have experienced trauma,” Leff explained. “Kids come in, and it’s not that they don’t have an attachment (disorder). It’s not that they don’t have trauma. It’s that they also have this.”

Leslie Leff, LICSW, as quoted in Castillo, “ I Wish I Could Help You, ” Daily Hampshire Gazette, 28 May 2019. https://www.gazettenet.com/Fetal-alcohol-spectrum-disorder-25766764

Check out the latest newspaper article about FASD in MA…thanks to Leslie Leff and parents for facilitating this!https://www.gazettenet.com/Fetal-alcohol-spectrum-disorder-25766764

Pat

My son is 24 years old. He has been in a specialized school or program since he was 9 years old. He has an FASD. We fought for him and he worked so hard throughout his school years…harder than most of us could imagine. He attended a therapeutic boarding school until he was 22 years old. But now he does not qualify for services. He can not access his IQ. He can not live independently. He meets 6 out of 7 of the functional limitations that are requirements for eligibility for DDS. He unfortunately does not have Autism. He has an FASD. The Autism Law is discriminatory. This state has one of the most restrictive definitions of Developmental Disabilities. He meets the Federal definition of Developmental Disability, but here in Massachusetts, he does not. If he has the same limitations, why can he not get the same help? The outlook for him is not good. He only needs some flexible supports to help him work and live. I am afraid for him.

Is he or his disability not important enough?